Category Archives: Disability Rights

Making complaints processes accessible

This post is taken from a presentation given at the third Disability Conference; Another complaint, another Improvement. Why is it so Difficult to complain? Making your complaints processes more accessible.

It has not been in the Kiwi DNA to complain, and especially not disabled people, at least not to complain formally, but we are learning fast in the post Human Rights Act, Health and Disability Commissioner Act and the United Nations Convention on the rights of people with Disabilities (CRPD), even the post-Fair Go environment. Disabled people are finding and using their voices to complain, or as one speaker put it, to speak out.

Why complaints are critical in a human rights environment

It is critical that service providers complaints processes are accessible. Complaints lead to service improvements and contribute to achieving human rights for disabled people. An important element of human rights is that people must be able to complain and seek redress when things go wrong.

People will share their stories of bad experiences widely, in their communities and on social and general media, and these stories can be harmful to your organisation and reputations. The media are becoming more interested and are increasingly taking such stories seriously, especially in light of recent high profile abuse cases.

The social media go on regardless. If you are not participating in social media you don’t know what people are saying about you. While this raises questions about time and resourcing for smaller organisations, monitoring, careful management and innovative ways of keeping tabs through social media are important.

Beyond Charity

We are well beyond the charitable days when people who received services from disability support organisations had to be constantly grateful and say thank you for everything, and be grateful for anything, no matter what quality. Of course that does not mean that we should not appreciate good service.

Attitude is all

It is all about attitude, to taking complaints, and to service users. The glass can be half empty or half full on both counts. Respect for service users and their right to take complaints is fundamental. Well-meaning words on paper are not enough. You have to walk the talk.

Complaints should be seen positively, as a means of improving relationships, learning and making positive change and providing better services. Complaints are helpful.

Accessibility is a broad issue and a strategic one.

Some of the issues underpinning accessibility are about how comfortable and confident people feel about complaining, and the same is true about those who receive complaints.

Complaints processes are all about openness and good communication at every level. The organisational culture that values community connectedness and processes with integrity will be more accessible than one that does not. An open, accessible, accountable culture building strong trustful relationships with those who use the services will contribute to an organisation where people feel they can speak out when things go wrong.

Speaking out may happen differently for different people. Listening also takes different forms. Recognition of these differences is important.

Best practice

It is ironic that when researching this presentation I found some information on ‘so called’ accessible complaints procedures available in inaccessible pdfs! Happily they were not New Zealand disability support organisations.

But I did find it quite hard to locate complaints processes on several disability service provider web sites I looked at, and very easy and clear on one other. Some were not overly welcoming, for example one large provider did not have an online form, giving an email address only. This can be confusing because it may open a new version of the email program which is annoying and a usability problem. To avoid opening a new version I had to cut and paste the address.  A well designed and accessible online form can also ask some helpful questions. The more options for complaints the better.

Knowing about and being comfortable with the process

People don’t always know how to complain, the way the process works, and how to complain appropriately. They may be afraid of the consequences of making a complaint.

There are also some underlying general factors which affect the accessibility of complaints systems. They apply across the board, but have particular resonance for the situation of disabled people. If you need a service, and your provider is the only game in town you may feel particularly vulnerable if you complain. It is necessary for providers to understand and compensate for this particular power in-balance.

Develop and implement an accessibility policy

There are some important strategic considerations needed before thinking about a complaints process. One very important one is an accessibility policy. This should cover everything in the organisation from physical to electronic access. It should have associated guidance and standards.

For a process to be accessible and actually work complainants need to;

  • Be taken seriously and treated respectfully
  • Be heard
  • Be safe and not be victimised for complaining

Make it easy to complain.

If like the hitch hikers guide to the galaxy your complaints process is on the equivalent of Alpha Centauri it will all be pointless. Make your complaints process easy to find and inclusive. Accept complaints in a variety of ways. If you don’t they will get around anyway through social media and word of mouth and possibly become distorted.

If complaints can be made by letter or in writing only, many people, even those who are perfectly literate and able to write a letter will find it difficult to complain because they may be upset or stressed at the time they want to complain.

Complaints and related correspondence should be accepted in a number of different ways including

  • in person – face to face
  • over the phone or Internet, including by the Relay Service
  • online forms
  • in writing via email, fax and letter
  • Access should be provided to translating and interpreting services for non-English speaking people.
  • Complaints in Maori and New Zealand Sign Language should be accepted.
  • Complaints from Pacific Peoples should also be welcomed.

Accessibility should include access for children and older people as well as for the range of disabled people.

The reason I take such a broad approach to accessible complaints is that, even if your organisation provides services to a defined group of disabled people, you can’t assume they won’t have other impairments or identities, or that their whanau or support people won’t have other impairments or be from a variety of ethnic groups. People and families are complex, and have complex and rich identities which we ignore at our peril

Getting started.

  • Complaints are Strategic Complaints, and the way they are processed are strategic, part of your PR and communication strategy. You need policy, guidance and robust procedures
  • Have an accessibility policy with implementation guidance for staff
  • How to complain Service users must know they can complain and be supported independently if necessary
  • Make your complaints process easy to find, or people might think they can’t complain, or that complaints are unwelcome. They won’t complain if it is too hard.
  • If complaints are easy to make, you are more likely to get some good ideas and avoid people taking to the law or to the media.
  • Have a variety of ways to complain and clearly communicate their availablity
  • Structure the process so it asks questions to help the complainant, and you, clearly identify the problem complained about, and what they would like to happen as a remedy
  • If people need support to complain, make it clear they can bring a support person of their choice
  • Empower all staff to take complaints, invaluable in very small organisations.
  • Any written material should be in plain everyday language and not include confusing legal terms or jargon. Many disabled people have poor literacy. Easy Read may be an option too.
  • Make sure your web site is accessible and has an easy to find, accessible online complaints form, along with other alternatives. Some people find it easier to complain online.
  • Your buildings should be properly accessible, regardless of the service.
  • Make sure you provide relevant material in formats other than pdf.
  • Your staff should know how to use the Relay Service and frontline staff could take a Sign Language taster class during Sign Language Week or classes offered in their communities.
  • Check people’s requirements for communication when they complain.
  • Have toll free numbers if your services are offered beyond the free call area.
  • Use social media to take complaints and always respond when people do, a good reason why you should be active and involved in social media.
  • Remember not everyone has access to email or the web.
  • Timely attention to complaints and their resolution is critical. Having some internal standards might be useful.
  • Analysis of complaints and a feedback loop should take into account how well you are doing all of the above as well as the type of complaints you are receiving.

Accessibility is a journey. Make it an enjoyable and rewarding one for everyone.

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Filed under Accessible Engagement, Disability Issues, Disability Rights, Inclusion, Information Accessibility, Media, Web Accessibility

Disclosing disability during job search

A little while ago someone asked me about disclosing their disability when applying for a job. The answer I gave was focused on being in control of the process of disclosure, of making sure you choose the time and the place to disclose, and of disclosing in a positive way.

Since then I have been thinking some more about a problem which worried me a good deal when I was setting out on my own career. I took a variety of approaches, sometimes disclosing, sometimes not, and occasionally lying, which I do not recommend under any circumstances.

Disclosure is individual

The difficulty about disclosure is that it is such an individual thing. It depends on your impairment, whether or not it is hidden, whether you might need modifications to your workplace, or particular technology to help you do your job, or whether or not you might need to organise your work differently, or do it in a different way. There is also the fear, sadly, still not entirely unfounded, that discrimination will occur following disclosure.

However you disclose, and at whatever stage of the process, you need to take responsibility. Thoroughly research the job to help you decide. Think about what you need to do the job, and have a plan.

If your impairment is invisible and won’t affect the way you do your work, then the answer is easy, you don’t have to disclose. But if you don’t disclose, and your impairment does affect your job then there may be problems for you. If your impairment is very obvious you can seize the high ground, directing the conversation the way you choose.

How and when

There is no right or wrong way or time for disclosure. Don’t dwell on limitations. Weigh the pros and cons of disclosure at each stage of the job search, recruitment and hiring process, wherever it is appropriate for you. Think about the following stages.

  • In a letter of application or cover letter;
  • Before an interview;
  • At the interview;
  • In a third-party phone call or reference;
  • After you have a job offer;
  • During your course of employment; or
  • Never.

When you do disclose make sure you are clear about your needs in the workplace. Try to anticipate questions you might be asked and have some answers ready. You might like to practice disclosing with someone you trust who will give you feedback. Disclose on a “need to know” basis only.

What information to give

You need to disclose information relevant to the job only. Take the opportunity to explain positively how you might perform particular parts of the job well, perhaps with some modification. You should expect confidentiality with disclosure.

If you do disclose the following may be a useful guide to the information you choose to share.

  • General information about your impairment;
  • Why you are disclosing;
  • How your disability affects your ability to perform key job tasks and any ways you can do things differently;
  • Types of accommodations that have worked for you in the past; and
  • Types of accommodations you anticipate needing in the workplace;

Good luck!

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Filed under Disability Issues, Disability Rights, Inclusion, Miscellaneous

Digital workplace accessibility

A blog for Global Accessibility Awareness Day

The purpose of this day, May 9, is to get people talking, thinking and learning about digital (web, software, mobile, etc.) accessibility and users with different disabilities.

In New Zealand consideration of web and digital accessibility most attention is paid to public-facing websites that offer public information and services. We need to broaden the discussion, as digital applications have penetrated most areas of our daily life, accompanied by accessibility questions.

The workplace is increasingly digital. Some years ago I wrote an article for the Human Resources Journal, subsequently published on the Neon web site, An Accessible Work Wide Web.  Since then a great deal has changed, although some of the same accessibility tips I outlined then are still useful. It is time for Human Resources (HR) people to explore digital accessibility again. A few questions, by no means comprehensive, might help the discussion get started.

It is important to note that accessibility issues affect a range of disabled people, not just those using screen readers.

The recruitment process

  • Most recruiting is done online. How accessible are these processes, the web sites carrying the advertisement, the job descriptions, the forms for completion, responses and so on?
  • What happens if someone asks for information in an accessible format?
  • How easy is it for an applicant to discover what digital tools they need to be familiar with, to meet work requirements?

At the interview

  • Are people asked appropriately about their digital accessibility requirements as well as their physical access needs?
  • Is a test task accessible to all candidates?
  • How are interview questions about assistive technology handled?

In the workplace

  • When a disabled person starts work can they “hit the ground running” with their assistive technology?
  • Is your workplace truly inclusive or is there a scramble to cobble together an individual accommodation?
  • When tendering for intranet development and social media platforms what weight is given to accessibility?
  • How closely do you work with communications, web and IT people to achieve the best accessible outcomes for everyone in your organisation?
  • Do you know how and where to get help on digital accessibility?

Of course the whole thing would just go away if you rejected all applications from disabled people, (that you know about,) as too much trouble, but the risk is that you might just miss the best person for the job. That won’t solve the question of an ageing work force, or staff who acquire disabilities either. They might need digital accessibility so you can retain their skills and experience.

Like anything else, good planning and strategy will bring positive, productive results and prevent costly mistakes in terms of lost productivity, clumsy workarounds, or at worst human rights complaints or personal grievances.

Introducing accessibility using the concepts of universal design is a win-win in the workplace.

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Filed under Accessible Engagement, Disability Issues, Disability Rights, Inclusion, Information Accessibility, Web Accessibility

Women, disableism and literature

In my last blog post I analysed why disabled women are invisible in New Zealand. This time, since I am joining other bloggers around the world on Blogging against Disableism Day, I have selected a subject which, as a disabled woman, is dear to me.

Being denied something which is generally of value to others is disableism, (discrimination,) at work, intentional or not. This is particularly true for those of us born with disabilities growing up.

Children and young people as they grow see similar life experience to their own life experience reflected around them through all kinds of media. It helps them find out who they are, and how they want to be in the world, good or bad. If they love reading good books they will probably meet a range of life experience, similar and dissimilar to their own in books.

Disabled children are denied this experience. Problematic “inspiration porn” and other negative media depictions aside, there are few, if any, good books written from their perspective by disabled authors who understand this experience of growing up with a disability at a very deep human level. Disability is constructed differently in different societies. It is constructed from a generally unchallenged non-disabled perspective in western literature. There is no body of literature or debate beyond a struggling academia to support any change, at least in New Zealand.

I do wish I could find similar life experiences to mine reflected in our literature. It was bad enough growing up without New Zealand books as my generation did. But I often experienced feelings of isolation as I didn’t know anyone like myself. Nor could I read about anyone like me, except Helen Keller, whose life experience was light years away from mine, in ways other than time, geography and personal circumstances. Even her impairment was promoted as a non-disabled construct and largely remains so.

Mental illness does seem to be an exception to the rule of silence. Charlotte Perkins Gilman’s The Yellow Wallpaper is a powerful example. Closer to home I have of course read Janet Frame’s early books. But there is now a climate of denial around her experience. Whether or not she was mentally ill, she still had the searing experience of being labelled and treated as disabled. I am also interested in the experience of Robin Hyde, although some of her writing is out of print and not accessible. At that time she probably would not identify as disabled, a fairly modern concept.

Disabled Women’s experience is starting to be reflected in dance, and in art and crafts, although disabled artists are often referred to as “outsider” artists, which I don’t like. Another less discriminatory term should be used.

Literature seems to be more difficult to infiltrate here. While I can find some international non-fiction about disabled women’s experience, often academic, I long for some general well-written, thoughtful, crunchy, insightful and satisfying everyday accounts of lives lived in the modern everyday world of disabled women, whatever that might be.

Self-publishing may not be the answer either, as I have seen too many poorly written edited and presented books telling “inspirational” life stories. They are frequently self-absorbed and undisciplined.  Doris Lessing’s description of the writing process is my favourite. She says,

“The whole process of writing is a setting at a distance. That is the value of it – to the writer and to the people who read the results of this process, which takes the raw, the individual, the uncriticised, the unexamined, into the realm of the general.”

Has no New Zealand publisher ever seen such a manuscript written by a disabled woman on the subject of the lives of disabled women? Has none ever been written, or do publishers think there is no market for such books? This situation needs to change.

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Filed under Disability Issues, Disability Rights, Inclusion, Information Accessibility, Media, The Arts, Women